When Your Child Has a Scary Chronic Illness

By Jacob Molyneux, senior editor

It may be easier to live with a chronic illness than to have a child who has one. The June Reflections essay, “Seized,” is by a mother who eloquently evokes her struggle to accept her daughter’s epilepsy. She honestly confronts her own resistance to letting her daughter be a normal child—despite the terrifying episodes, the sense of helplessness she feels as a parent, the wish that she could always protect her daughter.

Here’s how it begins, but I hope you’ll click the link and read the entire essay.

It begins with a gurgle from deep in Daney’s throat: low, primal, guttural. In the next few seconds, her back will arch and her palms will turn up. Her 10-year-old self will twitch, then tremble, like she’s being electrocuted—and in a way, she is.

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2016-11-21T13:09:55+00:00 June 13th, 2012|nursing perspective|0 Comments

About the Author:

Senior editor/social media strategy, American Journal of Nursing, and editor of AJN Off the Charts.

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