When Patients Ask About Palliative Chemotherapy

Photo © Associated Press. Photo © Associated Press.

Nurses repeatedly witness the suffering of people with advanced, metastasized cancer who are undergoing chemotherapy. These drugs often seem to diminish rather than enhance the quality of the remaining weeks of their lives.

In the first article in a new AJN series on palliative care, author Marianne Matzo points to research indicating that chemotherapy in end-stage cancer does more harm than good. So what should we do when patients ask (as in this article), “Is the chemotherapy going to help me? And if it’s not, why are they offering it?”  […]

2016-11-21T13:01:08-05:00June 14th, 2016|Nursing, patient engagement, patient experience|1 Comment
Read More

Not a Nurse but Her Mother Was, and Now It Really Matters

June_Refl_Illustration Illustration by Lisa Dietrich for AJN

The loss of Emily Cappo’s mother, a competent and supportive parent and an accomplished nurse, leaves an enormous gap in her daughter’s life. Then her own son gets sick.

Cappo writes about these events in “I’m Not a Nurse, But My Mother Was,” the Reflections essay in the June issue of AJN.

Without her mother to turn to for help and guidance, Cappo has no idea how she’ll handle the situation. “There I was,” she writes,

the nonmedical person in my family, the person who hated blood and needles, being thrown into a situation demanding courage, stamina, and role modeling.

But we rise to the situation that presents itself, if the stakes are high enough. Cappo discovers what many nurses already know: the nurses who care for her son make all the difference in his care, and provide her with essential support as well. […]

2016-11-21T13:01:11-05:00June 3rd, 2016|narratives, Nursing, patient engagement, Patients|0 Comments
Read More

Psychiatric Nursing: The Seemingly Unreachable Patient

By Jennifer Rodgers for AJN. Illustration by Jennifer Rodgers for AJN

In many fields, we must keep doing the same thing over and over without any apparent results. Nurses, for example, may find that their efforts to make a patient safe, to reach a patient, to ease a patient’s suffering have little visible effect. This is just part of the work, but some patients will inevitably pose a greater personal challenge than others.

“Five Words,” the Reflections essay in the May issue of AJN, written by former psychiatric nurse Tania Renee Zayid, is about one of those patients and the feelings of hope and disappointment his nurse experiences in his presence. In it, she writes:  […]

2016-11-21T13:01:12-05:00May 23rd, 2016|narratives, Nursing, nursing perspective, patient engagement, Patients|0 Comments
Read More

A Room with A View: Physical Environments and Healing

By Betsy Todd, clinical editor, MPH, RN, CIC

Illustration by Janet Hamlin for AJN. All rights reserved. Illustration by Janet Hamlin for AJN. All rights reserved.

Computers, alarms, automated drug dispensing, complex medical protocols—the ways in which we provide care have changed a lot over the past 30 years. Has forced multitasking made us forget that, buried beneath the printouts and data, there is a human being in need of support?

In this month’s AJN, author Joy Washburn shares the story of David, a man with advanced Parkinson’s disease whose medical condition results in his transfer from a cheerful rehab setting to a long-term care bed in the same facility. While his old room in rehab overlooked gardens and a children’s play area, the new room faces a parking lot. To make matters worse, no one seems to have prepared David for the move, and many nurses erroneously assume that his advanced physical disability means that he is also cognitively impaired.   […]

2016-11-21T13:01:18-05:00April 13th, 2016|Nursing, nursing perspective, nursing stories, nursing students, patient engagement, Patients|1 Comment
Read More

Nursing Insights: The Experience of a Chronic Illness as a Series of Subtractions

Illustration by Janet Hamlin for AJN. All rights reserved. Illustration by Janet Hamlin for AJN. All rights reserved.

Chronic illness is often experienced by patients as a series of subtractions. A progressive illness like Parkinson’s reveals this process vividly as the ability to move, speak, care for oneself, all gradually disappear or diminish.

The grief of lost freedom, lost abilities, lost agency, lost avenues of communication is easy to overlook. But it’s real, and can come out in uncomfortable ways. Here’s an excerpt from the start of this month’s Reflections essay in AJN, “A Room With a View.”

David was in his late 50s and had been diagnosed with Parkinson’s disease several years previously. Following a lengthy hospitalization, David’s wife agreed to a placement on the subacute/rehab unit in the facility where I was the instructor for nursing students during their older adult clinical rotation. . . . Although ravaged by the disease, David seemed to like having students provide his nursing care. . . .

One of his favorite activities was sitting by his room window, which overlooked the facility gardens and a play area for the preschool next door. For several weeks, I discovered a nursing student and David sitting by the window watching the outdoor activities in companionable […]

2016-11-21T13:01:19-05:00April 4th, 2016|Nursing, nursing perspective, nursing stories, patient engagement|0 Comments
Read More

Comment ground rules

1. Please be respectful.
2. We moderate all comments.

Content disclaimer

Views expressed on the blog are solely those of the authors or persons quoted. They do not necessarily reflect AJN’s views or those of Wolters Kluwer Health/Lippincott Williams and Wilkins.
Go to Top