Promoting Awareness of Patient-Centered Care

By Shawn Kennedy, AJN interim editor-in-chief

October is, among other things, patient-centered care awareness month. At AJN, we’ve been focusing on patient-centered care for some time, most recently by virtue of our collaboration on a series of articles with Planetree, a nonprofit that “facilitates patient-centered care in healing environments.” The first article, Creating a Patient-Centered System, appeared in March 2009; the final article (from which we took the image above) was published in September 2010, and they’re all available in a collection on our Web site. Articles focus on such topics as creating quieter hospital environments and promoting patient access to medical records. We’re excited that this collaboration evolved into a four-part free webinar series supported by the Picker Institute. The final webinar, A Patient-Centered Approach to Visitation, presented by Planetree vice president Jeanette Michalak, MSN, RN, along with Wendy Tennis, BA, and Nancy Jane Schreiner, BSN, RN, will be on October 19 at 1 pm EST. We hope you will register and learn how to facilitate family visitation that meets patient needs. (The Planetree Web site also offers a downloadable toolkit and suggestions to focus attention on patient-centered care.)

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2016-11-21T13:15:25-05:00October 7th, 2010|nursing perspective, patient engagement|0 Comments
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Startling Findings about Men’s Awareness of Male Breast Cancer . . .

… and a look at the benefits of dragon boat racing for breast cancer survivors of either sex.

By Sylvia Foley, AJN senior editor

Although breast cancer is far less common in men than in women, being a man doesn’t make one immune to the disease. Yet misconceptions about male breast cancer abound. In this month’s CE feature, Men’s Awareness and Knowledge of Male Breast Cancer, nurse researcher Eileen Thomas reports on a qualitative study of 28 men at higher risk (all had at least one maternal relative who had been diagnosed with breast cancer). The goals were twofold:  to learn more about men’s understanding and perceptions of this life-threatening illness, and to elicit information that might guide clinical practice and the development of sex-specific educational interventions.

The study findings are rather startling. Nearly 80% of the participants had no idea that men could develop breast cancer. Fully 100% of the participants reported that none of their primary care providers had discussed the disease with them. Asked how they thought male breast cancer was detected, most participants could name only one symptom  (“a lump”); one said, “They find it on the autopsy table.” And 43% reported that being diagnosed with breast cancer might cause them to question their masculinity. One participant stated, “I would feel like my manhood was taken away.” […]

2016-11-21T13:15:28-05:00October 5th, 2010|nursing perspective, nursing research, patient engagement|0 Comments
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Questions of Priority, Written in Vernix and Blood: Two Poems in ‘Art of Nursing’

By Sylvia Foley, AJN senior editor

Jenna Kay Rindo’s poem “An Ode to My Certified Nurse Midwife” (Art of Nursing, August) brims with the narrator’s gratitude for the clinician who has seen her through a “gloomy complicated gestation” with great skill and compassion. (Art of Nursing poems are always free online—just click through to the PDF files.)

This is no sentimental paean, though. This ode is a gritty read, full of vernix and “unrehearsed pain,” euphoria and shame. The child, we learn, was “conceived completely out of wedlock, / in a rush of holy illicit love.” The narrator at first only wants to know how long she can hide the pregnancy. It’s the nurse midwife whose “jubilant congratulations” never seem to waver, whose “size seven hands covered in  / sterile latex” draw the infant’s wide shoulders into the world, and give the young mother courage. It’s an ode, perhaps, to something we strive for but rarely attain: a nonjudgmental attitude.

“It is lucky to live outside the target groups,” begins the narrator of Erika Dreifus’s poem “The Autumn of H1N1” (Art of Nursing, October). She is referring to those considered most at risk for the flu and thus at the top of the list for immunization.

But when she finds herself hemorrhaging and frightened, waiting to be seen by a gynecologist who minimizes her distress, she reveals far more complicated feelings about “the prioritized.” It’s an unusually frank […]

2016-11-21T13:15:31-05:00October 1st, 2010|patient engagement|1 Comment
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No Country for Old Women

By Amy M. Collins, associate editor

For the past few weeks, my family has been living a health care nightmare. My 85-year-old grandmother, physically fit and as beautiful as an old-time movie star, but suffering from the first stages of Alzheimer’s disease, had a major meltdown. Her assisted living facility called to say she was harassing the residents and staff, claiming her belongings had been stolen, shouting at people at random, and even calling the police. Clearly not equipped to handle this level of agitation, the facility turned to us to pick her up and keep her for a few days.

The week that followed proved arduous—nobody seemed to know what to do with her. Her GP was at a loss, suggested that we bring her to the ED. Her neurologist prescribed Seroquel (after having to tackle and physically restrain her from the subsequent episode of screaming and pounding her fists on the wall, we called to tell the neurologist that the pill wasn’t working; he said to give her more; four pills later, she was still mildly agitated.) This went on for over a week. She came to live with us, where we listened, exhausted, to constant chatter that didn’t make sense. The talking never stopped—her voice grew […]

2016-11-21T13:15:38-05:00September 22nd, 2010|nursing perspective, patient engagement|7 Comments
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Taking Away Choice — The Wrong Answer to Domestic Violence

By Meg Stone, MPH. Stone is the executive director of IMPACT Boston, an organization that works to prevent violence and abuse by giving people the tools to protect their safety and advocate for healthy relationships and sexual respect in their communities. A long-time domestic violence advocate with a degree in public health, she has, in her own words, “a strong interest in raising awareness of the issues facing women who present to emergency departments with injuries related to abuse. My professional background includes training nurses and first responders in asking about domestic violence and documenting incidents of abuse on medical records.”

This post is longer than our usual, but we thought it was worth running in entirety. The names and identifying details of those mentioned have been changed.

In the mid-1990s it was rare in most places for nurses and social workers to call domestic violence organizations when women came to the emergency department with injuries related to abuse. I only remember one call from a hospital social worker in the upstate New York town where I worked as an advocate at the local battered women’s program.

Carolyn, the director of the battered women’s service, called me at home on my day off. Nobody else was available, she said, so could I please […]

2016-11-21T13:16:11-05:00August 10th, 2010|Nursing, patient engagement, Patients|1 Comment
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Views expressed on the blog are solely those of the authors or persons quoted. They do not necessarily reflect AJN’s views or those of Wolters Kluwer Health/Lippincott Williams and Wilkins.
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