No Longer Alone: Nurses Supporting Family Caregivers

By Susan C. Reinhard, PhD, RN, FAAN, senior vice president and director, AARP Public Policy Institute, chief strategist, Center to Champion Nursing in America; Elaine Ryan, MPA, vice president of state advocacy and strategy integration, AARP government affairs; and Trish O’Keefe, PhD, RN, NE-BC, interim president, Morristown Medical Center, New Jersey

Teaching a daughter to help her mother with range-of-motion exercises. Teaching a daughter to help her mother with range-of-motion exercises

The public trusts nurses to care for them and to teach them how to care for themselves and for those they love. But a 2012 AARP/United Hospital Fund report funded by the John A. Hartford Foundation, Home Alone: Family Caregivers Providing Complex Chronic Care, shows there is a big disconnect. In this first nationally representative study of families providing complex care activities, almost half reported that they had provided medical/nursing treatments, including injections, wound care, administering multiple medications, managing colostomies, and giving tube feedings and nebulizer treatments—among many other tasks that nursing students find daunting when they are first learning how to do them.

Family caregivers are expected to step right in, with little to no instruction or support. Most (nearly 7 out of 10) of those they cared for did not get a home visit by a health care professional, despite multiple encounters […]

2016-11-21T13:01:47-05:00November 13th, 2015|Nursing, patient engagement, Patients, Public health|3 Comments
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Calciphylaxis: The Intriguing Case of Ms. W.

Ms. W. post-recovery, with her husband Ms. W. post-recovery, with her husband

By Sylvia Foley, AJN senior editor

“I survived, although I had been told that I’d eventually die from infection in the wounds.”

In one of this month’s two CE features, “Calciphylaxis: An Unusual Case with an Unusual Outcome,” Tina Wangen and colleagues report on the intriguing story of L.W., a 40-year-old patient who, aside from being female, had no other known risk factors for the disease. Here’s an overview of the article:

Calciphylaxis is most common in patients with end-stage renal disease, and hyperparathyroidism is often present as well. But several cases in patients with normal renal and parathyroid function have been reported; this article describes one such case. The etiology and pathophysiology of calciphylaxis aren’t well understood. There are many risk factors, and the reported median survival time is 2.6 months after diagnosis. The condition is characterized by isolated or multiple lesions that progress to firm, nonulcerated plaques and then to ischemic skin necrosis and ulceration.
In August 2010, a female patient arrived at the hospital with multiple deep, painful necrotic wounds. Given this patient’s presentation on admission, the nurses kept expecting the physicians to initiate end-of-life discussions with her and were surprised when this did not happen. After five days, the patient was diagnosed with calciphylaxis in the unusual presentation […]

2017-07-27T14:44:29-04:00October 10th, 2014|Nursing, Patients|3 Comments
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