‘What’s Not to Like?’ A British Nurse, Recently Treated for Cancer, Weighs In on U.S. Health Reform

Here’s a little perspective on health care reform in the U.S. from AJN’s contributing editor on international health. Jane Salvage, RGN, BA, MSc, HonLLD, FQNI, is a visiting professor at the Florence Nightingale School of Nursing and Midwifery, King’s College, London, and recently spent a year on the Prime Minister’s Commission on the Future of Nursing and Midwifery.

Just two weeks ago I learned I had a stage 1 endometrioid adenocarcinoma—a cancer in the lining of my womb. In many other countries today, and in the UK until recent years, this would eventually have killed me. But here I am today, happily home after a hysterectomy, probably cancer-free, thanking my lucky stars and our British National Heath Service (NHS).

My life has been saved by an army of people, from nurses and doctors to lab assistants, many of whom I’ll never meet. All my high quality care was free at the point of delivery, efficiently funded from my taxes instead of boosting the profits of insurance officials or millionaire surgeons. And I am pleased that my taxes have also subsidized the care of the demented, impoverished old lady in a nearby bed, even though her hollering and howling kept us awake most of the night.

What’s not to like? A great deal, you’d think from the nonsense talked about our UK NHS during your U.S. health reform debates. Last September, visiting the Robert Wood Johnson Foundation Initiative on the Future of Nursing, I stayed at the same […]

‘After Heart Surgery’: A Survivor’s Account in March’s ‘Art of Nursing’

by Sylvia Foley, AJN senior editor

“I am grateful for the two hours my heart / stopped,”  says the narrator of  “After Heart Surgery.” It’s an incredible, heart-stopping line.  The voice is that of someone who has literally returned from the dead. He tells the tale with lively wonder, pledging  “allegiance to each leaflet of my bicuspid valve.” And yet as he lies in the bed, “eyes open,” attending carefully to his own heartbeat, we sense his lingering fear, too.

Poet Richard Waring doesn’t flinch from difficult subjects and offers them to us with rare clarity. In an earlier poem,Oboe,” Waring wrote of a boy’s time on a locked ward and how music helped him find “the grammar of a new survival.” (For either poem, click on the link and then open the PDF.) Waring is also a senior layout artist at the New England Journal of Medicine; his poems have appeared in venues as varied as Chest and The Boston Globe. We’re honored to have his work in our pages.

If you’re a poet or a visual artist, we hope you’ll consider submitting to Art of Nursing. Read this blog post for details. Guidelines can be found here. Still have questions? Write to the Art of Nursing coordinator (me) at sylvia.foley@wolterskluwer.com.

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2016-11-21T13:18:35-05:00March 26th, 2010|Nursing|0 Comments

Online Social Networks for Chronic Illness – Time for Providers to Take Them Seriously

For many people, social networks are a place for idle chatter about what they made for dinner or sharing cute pictures of their pets. But for people living with chronic diseases or disabilities, they play a more vital role.

“It’s really literally saved my life, just to be able to connect with other people,” said Sean Fogerty, 50, who has multiple sclerosis, is recovering from brain cancer and spends an hour and a half each night talking with other patients online.

That’s from an article in the technology section of today’s NY Times, which draws upon a report from the Pew Internet and American Life Foundation about how people with chronic illnesses are finding connection, support, and information in online social networks like DiabetesConnect.

Chronic illness can be isolating for many reasons: you often can’t explain a condition’s relentlessness and complexity to those around you; at the same time, you may be homebound or to some degree limited in the types of activities you can engage in.

Providers should be aware of such online networks and the role they play for patients. Patients get useful information about self-care, and they feel less alone—though some who study online social networks do caution against any sites where the mood is focused entirely on the negative. Good feelings and bad (like good information and bad) can both be infectious on the Web, as we’ve learned during recent political debates.

Is Nurse Jackie Good for What Ails You?

[youtube=http://www.youtube.com/watch?v=5op6IdCXYqo]

Season 2 of the Edie Falco series on Showtime kicked off yesterday evening. Two immediate observations in passing: Jackie’s lifestyle is starting to catch up with her (so the show may be unrealistic at times, but it’s not all fantasy) and the episode’s most significant representation of patient advocacy showed Jackie on the phone trying to get a patient insurance coverage (good timing, on the eve of Obama’s signing of the health insurance reform bill).

We posted on “Nurse Jackie” from different angles (skeptical, enthusiastic) back during season one. It’s just entertainment, say many people. Others resent the less than idealized depiction of a nurse. Others find a heroic figure in Jackie despite her bad behavior. Or because of it. And so it goes. But the show does seem to have staying power. Are you watching? Are you a nurse watching, and how does that feel?

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Will Anyone Miss Accidents As ‘Preexisting Conditions’ and Other Insurance Doubletalk?

By Shawn Kennedy, MA, RN, AJN interim editor-in-chief

It’s interesting to have a firsthand encounter pertinent to the HCR story that is consuming the headlines. Recently, my son had a fall and dislocated his shoulder. He knew what had happened because he did it as a freshman in high school, some 10 years ago while playing sports. So he went to an ER and had the shoulder popped back in, saw an orthopedist as recommended, and went for physical therapy—all covered by his insurance plan. But all his claims for reimbursement were denied. The reason the company gave: his dislocated shoulder was considered a ‘preexisting condition.’

After my husband peeled me off the ceiling, we approached this methodically—we gathered forms, wrote letters, requested letters from the hospital, the orthopedist, the physical therapists—and appealed the ruling. After a bit, we received a response saying that they’d reconsidered and would cover the injury according to policy.

This is not a terribly compelling or poignant case, but it’s an example of the “first deny all claims” approach of some companies. Yes, it was resolved on appeal fairly easily, but why did it need appealing in the first place? I can’t imagine what patients and families with chronic illness must go through in trying to get treatment covered.

If the only thing health reform does is to eliminate the unjust use of preexisting conditions to deny coverage, it will get rid of one of the most critical obstacles to access to care.

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