Time Matters, Priorities Change: A Nurse and Cancer Survivor on Living with the Pandemic

Everything is different, and the same.

Michael Himbeault/Wikimedia Commons

It’s going to be a while before things get to normal, if they ever do. It’s more like the future will become the normal.

The only thing in my experience I can liken it to is my cancer survivorship: you start living your life again, but everything is different. Priorities change. Your sense of safety never fully returns, yet because of this you become more purposeful in living: time matters. It’s as though you go on living, but learn a new way to do it.

There’s actually a sense of freedom accompanying the realization that nothing/no one lasts forever.

Finding a middle ground.

After I completed treatment, I watched the Jeff Bridges film Fearless (1993). His character is a survivor of a horrendous airliner crash, and he develops a sense of invincibility as a way of coping. I understood his character really well. You either hide in fear, or you go forward as if you are invincible. Eventually, you discover a middle ground. […]

2020-05-27T10:26:29-04:00May 27th, 2020|infectious diseases, Nursing, patient experience, Public health, wellness|0 Comments
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How Can We Improve the Hospital Experience of Visually Impaired Patients?

VIP Care Toolbox used in QI project

“Hello, I’m your nurse, Jane. Are you able to see me clearly?”

I have trouble functioning without a pair of eyeglasses within reach. If I were in the hospital without my glasses, I’d be at a loss—unable to read for pleasure, let alone read menus or instructions or consent forms. How much harder is it for people with moderate vision loss, or those who are totally blind?

Christine Carlson and her colleagues at St. David’s North Austin Medical Center in Austin, Texas, set out to answer this question. They met with visually impaired people in the community, reviewed the literature, and surveyed their own staff in order to learn the best ways to accommodate the unique needs of visually impaired patients, or ‘VIPs.’

In “Caring for Visually Impaired Patients in the Hospital: A Multidisciplinary Quality Improvement Project” in the May issue of AJN, the authors highlight how frightening and frustrating a hospitalization can be for those with limited or no sight, and share simple, practical interventions that can make an enormous difference in the safety and quality of a VIP’s hospital experience.

“I’m always afraid to go to the hospital. They don’t know […]

2020-05-21T09:52:23-04:00May 21st, 2020|patient experience, Patients|0 Comments
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Practicing the ABCDEs of Self-Care in Pandemic Times

While talk of the surge in COVID-19 cases continues, what has been less audible in the national discourse is the surge in mental health distress that will be with us long after the pandemic is gone. Many of us who have enjoyed relative psychological well-being are feeling inundated with near-pathological levels of anxiety, uncertainty, anticipatory grief, and real or secondary trauma.

Here are ABCDEs of self-care to keep yourself and loved ones emotionally—and physically—well.

ABCDEs of Self-Care

About

Stay informed as you need to regarding the pandemic, but then promptly pull yourself away and unplug. Initiate what we call a “sensory diet” to limit anxiety-provoking exposure to TV and radio news, social media, print materials, etc., beyond what you must know for yourself, your family, and/or your job. Fearful news can be addictive. Don’t overindulge!

Body

Many people, when asked how they can best care for themselves to stay well, say something on the order of “handwashing, masks, social distancing….” Sure, all that! But we also need to respect the healthy things our mother tried to teach us. How about exercise and fresh air (even if it’s just a three-minute brisk walk around the block), adequate sleep and decent nutrition? Honoring our bodies now will help us stay healthy and […]

2021-01-21T11:10:16-05:00April 13th, 2020|infectious diseases, mental illness, Nursing, wellness|0 Comments
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Permission to Grieve: A Poet Addresses the Unmapped Territory of Pregnancy Loss

You were so new, still more dream than person.

A poetry submission hits a personal chord.

photo by Susanne Nilsson/flickr

As the column coordinator for AJN’s Art of Nursing, which publishes poetry, flash fiction, and visual art related to health and health care, many poems cross my desk. I always appreciate the creativity and emotion in these poems, even when they aren’t quite a fit for our journal. And then there are the ones that not only fit, but that strike a personal chord and stay with me.

“Carrying,” by Katie Manning, PhD, MA, is one such poem. (Click on the PDF for the best version.) It immediately touched me because of the powerful way it described a sensitive topic: pregnancy loss. As a mother who lost a pregnancy in my second trimester, I found myself nodding with tears in my eyes at her elegant descriptions of grief and loss.

The poem received universal praise from our peer reviewers, and when I wrote to Manning to tell her we’d accepted it, I added a personal note about my own experience (something I had never done as an editor). We exchanged words of comfort and spoke about how the topic is not nearly discussed enough.

An […]

2020-03-16T12:16:01-04:00March 16th, 2020|patient experience, women's health|2 Comments
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Putting Down Her Burden: A Patient’s Final Choice

‘goodbye, inhaler!’

Chronic illness as a Sisyphean bargain.

Sisyphus was a legendary king of ancient Greece who was condemned by the gods to eternally roll a rock up a hill, only to have it roll down again each time as it neared the top.

Many people with chronic illness today may be able to relate. Chronic illness can mean years or even decades of worsening symptoms and ever more complex medication and treatment regimens, side effects of treatments, treatments for side effects, monetary pressures, activity limitations, a sense of separateness from the legions of the merely ‘walking worried’ around us, and the subtle pervasive tension and vigilance of never quite knowing what might come next.

The ironies of advanced medicine.

The assumption, of course, is that all the effort is worth it. And it is: many of us benefit from, or know people who benefit from, drugs that keep them alive when 50 or 100 years ago they would have died long ago, or keep them able to walk, or breathe without a struggle, or sleep without excruciating nerve pain or the itching of terrible skin sores, and so on. Life has always been about compromise; these are simply new refinements of a universal equation.

2020-01-23T10:03:01-05:00January 23rd, 2020|Nursing, nursing stories, patient experience|1 Comment
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Views expressed on the blog are solely those of the authors or persons quoted. They do not necessarily reflect AJN’s views or those of Wolters Kluwer Health/Lippincott Williams and Wilkins.
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