At the Intersection of Hospice and Obstetrics, a True Test of Patient-Centered Care

By Jacob Molyneux, senior editor

Renee Noble with her newborn daughter, Violet. Photo by Heidi Ricks. Renee Noble with her newborn daughter, Violet. Photo by Heidi Ricks.

We’d like to draw attention to a particularly frank and thought-provoking article in the October issue of AJN. “A Transformational Journey Through Life and Death,” written by a perinatal nurse specialist who is also a bioethicist, describes a hospital’s experience in meeting the needs of a patient with two very different, potentially conflicting, medical conditions.

It was a sunny afternoon in mid-October when I first met Renee Noble. I had already heard about her from staff who had given Renee and Heidi Ricks, her friend and doula, a tour of the neonatal ICU and were taken aback when they asked to see the Hospice Inn as well. The nurses knew that Renee had been diagnosed with ovarian cancer, but no one had said anything about it being terminal. Heidi had insisted that after Renee delivered she would need hospice inpatient care. Alarmed, the staff had called me, the perinatal clinical nurse specialist, after Renee and Heidi left.

In addition, this is a patient with strong preferences about her own care, preferences that may be at odds with the more conventional approaches to treatment held by […]

2016-11-21T13:03:43-05:00October 22nd, 2014|narratives, Nursing, nursing perspective, patient engagement, Patients|4 Comments
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The Underlying Connection Is Nursing

Angel sculpture on grave marker photo by author

Marcy Phipps, BSN, RN, CCRN, ATCN, TNCC, an ICU nurse who recently took up flight nursing, is an occasional contributor to this blog.

I recently experienced a series of events that seemed interconnected and orchestrated.

It started with my usual morning run. I was jogging out of my neighborhood, already sweating in the summer heat and absorbed—coincidentally—in an audio podcast about trauma care, when I came upon a man sprawled in the middle of a usually very busy thoroughfare. His motorcycle, badly damaged, was lying on its side next to a car with a crumpled door panel. The accident had clearly just occurred—traffic hadn’t yet backed up and no sirens could be heard heralding imminent assistance.

I had the weird sensation that I’d been running to the accident all along. I held his C-spine and monitored his neuro status while an off-duty paramedic managed the scene. Unexpectedly, a cardiologist I sometimes work with emerged from a nearby café and held his fingers to the man’s radial pulse, and then several more off-duty paramedics arrived.

It seemed fortuitous to me at the time—not the accident, of course, but the proximity of medical personnel who were so quickly available. And I had the impression that, despite not having worn a helmet, the motorcycle rider would be okay. […]

2016-11-21T13:03:52-05:00September 22nd, 2014|career, narratives, Nursing, nursing perspective, Patients|12 Comments
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On the Phone: Punctuation for a Parent’s Decline

Illustration by Elizabeth Sayles for AJN. All rights reserved. Illustration by Elizabeth Sayles for AJN. All rights reserved.

“It’s ridiculous. I’m deciding the rest of my mother’s life based on research I did on the Internet,” I tell him.

“You’re really good at that. Research, I mean,” he says, hope in his voice.

I want to scream that I don’t think an undergraduate degree in biology and a long relationship with Google qualify me as a medical professional.

Many of us don’t use the phone as often as we used to, but there are times of strangeness and loss when it may still assume the central role it played in an earlier era. The passage above is from “On the Phone,” the August Reflections essay, which finds a novel way to talk about the strains and strangeness of finding oneself a family caregiver—the gradual withdrawal of a once vibrant parent (or spouse or sibling) from the home that had once seemed to be defined by their presence, the isolation, the learning curve when faced with medical emergencies and the need to make crucial decisions that can’t wait, the reliance on the advice and interventions of nurses and physicians.

All Reflections essays are free and can be read in just a few minutes. This month’s is about an experience, family caregiving, that more and more of us are having in one form or another, whether we find a way to tell about it […]

2016-11-21T13:04:04-05:00August 15th, 2014|narratives, Nursing, Patients|1 Comment
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Come Into My Parlor

Amy Getter, MS, RN, lives in Eugene, Oregon, where, in her own words, she “works with people with life-limiting illness who are enrolled in a hospice wherever they consider ‘home.’”

by Ramon Peco/via Flickr by Ramon Peco/via Flickr

I fondly remember becoming acquainted with my first “parlor,” in a 100-year-old home that my family moved into during my teen years. The walls were dressed in faded, peeling, paisley-patterned wallpaper and a tarnished brass chandelier hung from the ceiling. French doors closed it away from the rest of the living area, giving it a slightly mysterious aura. Far-off city lights blinked at me from elongated paned windows. I immediately claimed it as my bedroom.

The word parlor (derived from the verb “to speak”) may have first been used in medieval monasteries. An “outer parlor” was designated for receiving outsiders and attending to business needs and the “inner parlor” was for the monks’ private use. During the mid-19th century, formal parlors evolved and could be found in homes like the one my family lived in.

Weddings, funerals (being “laid out”), and other social events occurred in the parlor. Home businesses emerged (such as “funeral parlors”—offering an option for laying out the deceased in someone else’s home!). In recent years, care of the infirm and preparation of […]

2016-11-21T13:06:28-05:00September 27th, 2013|narratives, nursing perspective, nursing stories, patient experience|3 Comments
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A Note on the Life Cycle of Blogs

This is just to say that we realize that personal blogs by nurses have life cycles. They wax and they wane. While a core few are updated consistently, with the occasional gap for a vacation, and live on and on, evolving their appearances or keeping the old reliable appearance, many more simply die a quiet natural death. In many cases, no one plays taps. They served their purpose, they were noticed by a few or many of us, and then they quietly grew quiet.

Sometimes the bloggers say goodbye. Sometimes they just stop as if abducted by aliens. Or by their lives, or jobs, or illness, or death, or families, or by an alter ego. Well, that last bit is just speculation. Often the blogs live on, like deserted homes with the furniture still in them, never growing dusty, never surrounded by weeds or visible decay yet somehow sad. Or not so sad: testaments to an episode in a life in which a voice was raised with humor or outrage or questioning in a solitary room with a keyboard somewhere after the kids were in bed or while the DVR recorded the latest episode of something or other or early in the morning while the plows scraped the streets of the night’s snowfall.

Some nurse bloggers are more bloggers than […]

2016-11-21T13:15:04-05:00November 5th, 2010|healthcare social media, narratives, nursing perspective|6 Comments
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Views expressed on the blog are solely those of the authors or persons quoted. They do not necessarily reflect AJN’s views or those of Wolters Kluwer Health/Lippincott Williams and Wilkins.
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