Healthcare social media encompasses the use of many social media platforms by both patients and clinicians, including nurses, in order to share information, stories, experience, and form communities.

Notes from the Nursosphere: Blogging Ethics, Tar Ball Vacation, Treating the Whole Person

Here’s a few things that got our attention late this week:

Chronic Disease Expert: U.S. Health Care Needs to Treat the ‘Whole Person’: At Kaiser Health News, a Q & A with a Stanford University chronic disease expert (who started her health care career as a registered nurse) focuses on the fragmentation of our health care system. Here’s a sample:

Q. Could the health care system do a better job addressing chronic disease?

A. The system would probably need to be totally reorganized if it was really going to do that. Right now, it addresses diseases or even parts of diseases or small sub-parts of the body. It does not address the whole, complex person with multiple chronic diseases. So, right now, what happens, if you’re lucky, you go to a primary care doc who kind of does the day-to-day stuff and then you see four or five specialists each of which do their little specialty part — none of whom really talk to each other except maybe to look at your laboratory tests on an electronic medical record if you’re really lucky.

It is totally uncoordinated. It’s chaotic. It serves pieces of people, not whole people.

Mental Health Impact of BP Spill Multiplies: Feel depressed and hopeless about the Gulf Oil Spill? At Covering Health, an article sketches out some of the journalistic work being done to look at what some people have actually begun calling “Gulf Oil Syndrome.”

Speaking of the oil spill, Sean Dent, a nurse who blogs at My Strong Medicine, has a recent post called 

Marketers Honing In On Online Nurses

Internet Splat Map (jurvetson/via Flickr)

Nurses, you’re being watched: a marketing Website has an article on the growing influence of nurses online. Let us know what you think. Here’s an excerpt:

. . . Manhattan Research recently released a report about nurses online noting that approximately three out of four U.S. nurses recommend health websites to patients. The study notes that the average nurse spends eight hours per week online for professional purposes, which is just as much time as physicians, and almost all of them use the Internet in between patient consultations. Nurses are also proactive in researching medical product information specifically online – over eighty percent have visited a pharma, biotech, or device company website in the past year.

In addition to the prevalence of the Internet as a research and patient communication tool, nurses are continuing to find their unique voices online through a growing number of prominent nursing blogs such as Codeblog and Emergiblog which both share powerful stories of healthcare from the nurses’ point of view.

Also found today on the Web: […]

Bloggers Who Blur Line Between Product Reviews and Paid Advertising May Face Regulation

I listened with interest because I frequently receive requests from companies that want us to casually mention their products or Websites on this blog. What the marketers who send these promotional materials don't seem to know is that AJN maintains a very clear separation between editorial and advertising content. This is very very important to us at a time when there are daily reports of research that's been ghostwritten by pharmaceutical companies and of influenctial physicians and health care reporters with close ties to various health care industries.

Bloggers Write about Living with Post–Breast Cancer Lymphedema

This month AJN features the first of a two-part article on post–breast cancer lymphedema, a debilitating sequelae to treatment for breast cancer that’s characterized by the abnormal accumulation of lymph in the arm, shoulder, breast, or chest. In editing this article, I was struck by the sense of isolation reported by many of those who develop this condition, which can be visibly disfiguring and functionally disabling, and for which there is no cure. I wondered whether any survivors were using the blogosphere to forge connections. Here's what I found . . .

New Nurses Blogging: The Dedicated, the Feisty, the Sleep-Deprived

Hospital by boliston / Adrian Boliston, via Flickr.

When I went looking for blogs by student nurses recently, I found plenty—but most appeared to be deserted, as if their authors had literally packed up and moved away after graduation. That’s understandable—and kind of a shame. Things can get interesting fast when one finds oneself suddenly working with real people in an ED or an ICU. Lucky for us, a few newly minted nurses are blogging on just that. (To comply with HIPAA regulations, most bloggers report that they alter patient details and scenarios.)

At Call Bells Make Me Nervous, Maha, “a shiny new nurse” (degree unspecified), blogs […]

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