About Jacob Molyneux, senior editor/blog editor

Senior editor, American Journal of Nursing; editor of AJN Off the Charts.

‘Incompatible With Life’

Shirley Phillips has a doctorate in physical therapy and currently works for a federally funded research and development program studying human performance in aviation. She was an airline pilot prior to her daughter’s birth.

AshleyAndShirley Ashley and Shirley

The pediatrician was working with a medical student when Ashley had another of her 105 degree fevers. The remnants of a birthmark on her forehead glowed crimson beneath the fringe of bangs I used to conceal it. It always seemed like a warning sign designed just for me, her mother.

I sat quietly while the pediatrician asked for permission to share some information about Ashley’s rare genetic condition with the medical student. Given her intellectual disabilities at the age of two, she was probably not going to understand a word he said, but I instinctively reached to cover her ears.

This resulted in the pediatrician saying, “See how her ear canals are curvy? And her ears are set low on her head? Notice her wide nasal bridge, and her barrel-shaped chest. I am certain when Ashley was born they knew right away that genetic testing was needed. Three or more abnormalities, like the club foot, the wide nasal bridge, the . . . ”

“Wait just a minute,” I said, hardly recognizing my own voice as I stammered out my dismay, interrupting […]

House of Death, House of Life: Reflections of a Hospice Volunteer

Perhaps the fundamental requirement for hospice volunteers is an open mind. Assumptions and first impressions rarely predict reality. I met a soft-spoken woman who was once a nun, then later became a theme park belly dancer. I met an ex-Marine officer and small-town police chief, a self-described “soldier by nature,” who denounced all wars after 1945 as senseless bloodbaths. I met a former civil rights activist upset that minorities were moving into his neighborhood.

lllustration by McClain Moore. All rights reserved. lllustration by McClain Moore. All rights reserved.

That’s from the August Reflections essay in AJN, “House of Death, House of Life.” The author, Ezra Ochshorn, explores the moments of tragedy and levity he encounters in his work as a hospice volunteer, the powerful impression made on him by people who are either at peace or full of “bitterness and regrets” as they approach death, his realization that his most important task is to be in the “here and now” with each person—and then to do his best to take this lesson back into his own life.

But why not read the entire short essay, since it’s free? Just click the link above.—JM, senior editor

Nursing Blogs Roundup: Some Veteran Voices and Some Lively New Ones

By Jacob Molyneux, senior editor/blog editor

Blogging - What Jolly Fun/Mike Licht, NotionsCapital.com, via Flickr Creative Commons Blogging – What Jolly Fun!/Mike Licht, NotionsCapital.com, via Flickr Creative Commons

Here are some new or newish posts of note on various nursing blogs:

At Nursetopia: “You Get What You Put In To Your Nursing Association.”

At Nursing Stories: “Memories of MICU,” a post about visiting a new state-of-the-art medical intensive care unit (MICU) and comparing it to one the author worked on in the 1970s.

At the American Nurses Association (ANA) blog called One Strong Voice: “Working With a New Graduate or Novice RN? If So, Be Mindful of Workplace Bullying.”

Episode six is now up at The Adventures of Nurse Niki, a newish blog written by Julianna Paradisi (her other blog is JParadisi RN). This blog is made up entirely of first-person episodes told by a fictional nurse named Niki. Each episode is short, detailed, and engaging, and it’s easy to keep up with it on a regular basis, or quickly catch up if you haven’t yet read any episodes.

At Digital Doorway: “Evolving as a Nurse: The Work of the Soul.” Here’s a brief excerpt:

“The evolution of a nurse […]

48 Years of Medicare (and Counting)

By Shawn Kennedy, AJN editor-in-chief, and Jacob Molyneux, senior editor

Next week marks Medicare’s 48th anniversary. President Lyndon Johnson signed the legislation creating Medicare on July 30, 1965, guaranteeing health coverage for the elderly. With the gradual implementation of the Affordable Care Act (ACA; 2010), Medicare, along with other government and private forms of health insurance, is undergoing changes, with efforts being made to rein in rising costs, combat fraud, tie quality of care to reimbursement, and so on.

PPresident Lyndon B. Johnson signing the Medicare Bill at the Harry S. Truman Library in Independence, Missouri. Former President Harry S. Truman is seated at the table with President Johnson. Photo: National Archives and Records Administration. President Lyndon B. Johnson signing the Medicare Bill. Former President Harry S. Truman is seated at the table with President Johnson. Photo: National Archives and Records Administration.

With the ACA’s date for mandated purchase of health insurance fast approaching, some states are setting up state-run health insurance exchanges to provide consumers with a standardized […]

A Fine Line Between Patient and Provider, and a Mother’s Plea for More Epilepsy Research

by Eric Collins, ecol-arts.com by Eric Collins, ecol-arts.com

Thomas is a frequent flier in our ER, a bespeckled 40-something with coke-bottle glasses, a man who seems to run, like a dog out for a joyride, right into the arms of the dogcatcher. The police bring him in, one man on each arm, his legs limp. Thomas has schizoaffective disorder, dives into the fountain at the mall, screams at strangers at the YMCA, paces outside the grocery store. In a way, I understand—sometimes behaving according to convention can be a little dull.

That’s the start of “Thomas,” the July Reflections essay in AJN by Emily Maloney. It’s about the fine, but still absolute, line that can exist between paid provider and patient at moments when life feels overwhelming to both. Or something like that—it’s hard to summarize a nuanced, lightly ironic account like this in a few words. Like all Reflections essays, it’s short, free, and worth a full read.

The July Viewpoint essay, “A Son’s Seizures,” is written from the perspective of a mother, Linda Breneman, who looked beyond her own experience to become an advocate for all those with epilepsy, particularly those with the intractable sort that doesn’t respond to most treatments. While most people with epilepsy respond to medications and can eventually live more or less normal lives, it’s the author’s well-argued conviction that more research needs to be done to help the subset of those with […]

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