Empowering Nurses: Advocating for Better Health Care Policies and Patient Well-Being

Influencing patient health through advocacy.

Did you know that as nurses we have the power to influence allocation of government funds and the passage of government bills on health care? Through advocacy for federal policy and appropriations (funding), we can influence the health care of our patients. We have a voice that can be used to provide lawmakers with a new perspective on the reasons for supporting health care policy. Government policies and budget allotment affect the health of constituents.  Through legislative action, nurses can make changes that affect the lives of individuals, especially those with chronic diseases, minority background, and economic instability.

Not just for patients but for the community.

The ethical principle of beneficence means to do good. As nurses, we have the responsibility to not only do good towards our patients but to communities, expanding our focus from the nurse–patient relationship to a broader community health lens. Nurses can move from patient advocacy that makes changes for one patient to policy advocacy that makes changes for communities of patients. As nurses, we can discuss disparities seen in health care with legislatures to provide a new and personal perspective on support of different health care laws.

Drawing attention to sickle cell disease.

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2023-08-17T12:50:15-04:00August 17th, 2023|Nursing|0 Comments
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Sickle Cell Disease: Complications and Nursing Interventions

Our cover photo this month features three-year-old twins Ava and Olivia. Both have sickle cell disease. In this tender shot, one twin is comforting her sister during treatment at Akron Children’s Hospital in Akron, Ohio.

How much do you know about sickle cell disease (SCD)?

Did you know:

  • that children with SCD can experience “silent strokes” that become clinically evident only as progressive neurocognitive deficits?
  • that renal complications account for 16%-18% of overall mortality?
  • or that SCD-induced priapism in boys and men is not only excruciatingly embarrassing and often painful but may require emergency treatment?

Recognizing common complications.

“Two of the greatest challenges faced by clinicians caring for patients with SCD are the lack of evidence-based guidelines…and the underuse of the few recognized disease-modifying therapies.”

In “Understanding the Complications of Sickle Cell Disease,” a CE feature in this month’s AJN, Paula Tanabe and colleagues provide us with readable and practical information about the complications of SCD.

If, like me, you are not an expert in SCD, this article is an excellent primer on how to recognize the most common complications of the disease, what treatments that are available, and where […]

2019-06-03T08:22:06-04:00June 3rd, 2019|family caregiving, Nursing, patient experience|0 Comments
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The Power of Imagination: Helping Kids with Sickle Cell Disease to Cope with Pain

By Sylvia Foley, AJN senior editor

Many people with sickle cell disease suffer from both acute and chronic pain, which can be severe. Although the exact mechanism isn’t known, the pain is believed to result when sickled erythrocytes occlude the vascular beds, causing tissue ischemia. Such pain, which often begins in early childhood, arises unpredictably. Although some pain crises may require ED visits, hos­pitalization, opioid treatment, or a combination of these, most are managed at home. Yet little is known about at-home pain management in people with sickle cell disease, especially children.

Table 2. Changes in Self-Efficacy, Imaging Ability, and Pain Perception in School-Age Children After Guided Imagery Training Table 2. Changes in Self-Efficacy, Imaging Ability, and Pain Perception in School-Age Children After Guided Imagery Training

Cognitive behavioral therapy (CBT) has shown promise in helping patients with other chronic illnesses to cope with pain. Cassandra Elaine Dobson and Mary Woods Byrne decided to test guided imagery, a form of CBT, among children enrolled at one sickle cell treatment clinic in New York City. They report on their findings in this month’s original research CE, “Using Guided Imagery to Manage Pain in Young Children with Sickle Cell Disease.” The abstract below offers a quick overview; if you click the image above, you’ll see an enlarged view of one table showing key results.

Objectives: The purposes of this study were to test the effects of guided imagery training on school-age children who had been diagnosed with […]

2017-07-27T14:47:16-04:00April 2nd, 2014|nursing research, pain management, patient engagement|0 Comments
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Views expressed on the blog are solely those of the authors or persons quoted. They do not necessarily reflect AJN’s views or those of Wolters Kluwer Health/Lippincott Williams and Wilkins.
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