Online Social Networks for Chronic Illness – Time for Providers to Take Them Seriously

For many people, social networks are a place for idle chatter about what they made for dinner or sharing cute pictures of their pets. But for people living with chronic diseases or disabilities, they play a more vital role.

“It’s really literally saved my life, just to be able to connect with other people,” said Sean Fogerty, 50, who has multiple sclerosis, is recovering from brain cancer and spends an hour and a half each night talking with other patients online.

That’s from an article in the technology section of today’s NY Times, which draws upon a report from the Pew Internet and American Life Foundation about how people with chronic illnesses are finding connection, support, and information in online social networks like DiabetesConnect.

Chronic illness can be isolating for many reasons: you often can’t explain a condition’s relentlessness and complexity to those around you; at the same time, you may be homebound or to some degree limited in the types of activities you can engage in.

Providers should be aware of such online networks and the role they play for patients. Patients get useful information about self-care, and they feel less alone—though some who study online social networks do caution against any sites where the mood is focused entirely on the negative. Good feelings and bad (like good information and bad) can both be infectious on the Web, as we’ve learned during recent political debates.

Nurse Organizations Oppose Move to Allow Non-Licensed Personnel to Give Insulin to Students (Despite ADA Testimony Supporting the Practice)

A scenario is playing out in California that may have far-reaching consequences for nursing and for school children with diabetes. At issue is a move by the California Department of Education to allow non-nurse, unlicensed school personnel—so, teachers, aides, administrators, and others—to administer insulin to children while at school or at school functions if licensed personnel are unavailable.

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