Are We Hearing the Questions that Patients and Their Families Don’t Ask?

“The spoken and unspoken messages we give patients and families are powerful.”

Viewpoint author Juanita Reigle

As a ‘frequent flyer’ of late, accompanying a family member on the long trek through cancer treatment, I’m acutely aware of the ways in which doctors and nurses communicate with us. Some have never mastered the art of interacting with people in stressful conditions. Others have remarkable radar and a special ability to “read between the lines,” identifying concerns that he and I haven’t yet voiced.

In ‘She’s Fine,’ the Viewpoint essay in AJN’s October issue, Juanita Reigle reflects upon how we respond to the questions patients and family members don’t raise. Some are left unasked because people are too overwhelmed to formulate a question. Some people aren’t ready to hear the answers. And sometimes, sadly, families sense that this doctor or nurse really doesn’t want to engage with them.

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2017-10-09T09:48:08-04:00October 9th, 2017|Nursing, patient experience, Patients|0 Comments

Unexplained Deathbed Phenomena: Honoring Patient and Family Experience

By Betsy Todd, MPH, RN, CIC, AJN clinical editor

by luke andrew scowen/flickr creative commons luke andrew scowen/flickr creative commons

When my dad died, a special little travel clock that he’d given me years before stopped working. It restarted a week after his death, and continued running for years. I have no explanation for this sudden lapse in timekeeping, but it made me feel closer to my dad.

I’ve heard many other stories of unusual events surrounding the death of a loved one. I was therefore delighted to read this month’s Viewpoint column, “Letting Patients and Families Interpret Deathbed Phenomena for Themselves.” In this short essay, Scott Janssen presents some intriguing research findings and a compassionate argument for speaking openly about these occurrences. He writes:

“It’s an open secret among those of us working with the dying – there’s a lot of strange stuff going on for patients, as well as for the clinicians and family members who care for them, that rarely if ever gets talked about: near-death experiences, synchronistic coincidences (stopped clocks at time of death, for example), out-of-body experiences, and visitations from deceased loved ones.”

Janssen, a former hospice social worker and now a psychotherapist, sees such phenomena as part of “the normal continuum of experiences at the end of life.” He calls upon clinicians to create safe contexts in which patients and families can share these experiences without fear that they will be judged, ridiculed, or dismissed by caregivers.

It’s food for […]

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