Posts Tagged ‘dementia’

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Are You Ever Justified in Deceiving a Patient?

March 1, 2012

A patient’s irrational refusal to take medication can be frustrating for the nurse. Crushing the pill into applesauce or ice cream saves time and effort, and spares the patient the aggravation of quarreling. But while hiding medication is sometimes ethically justified, often it is not.

That’s the start of the “Putting the Meds in the Applesauce,” an article (free for March) by nurse ethicist Douglas Olsen in the current issue of AJN. Olsen notes that studies suggest hiding medications in food may be a relatively common practice, considers the ethical principles at play in such a decision, and offers advice for those who may be considering it. (Added: The column chiefly concerns the nursing care of cognitively impaired patients—not those who simply don’t want medications or those with with psychiatric illnesses who may be endangering themselves or others by refusing medication.)

Says Olsen, “[t]wo factors must be considered in determining whether hiding medication is justified or not: the nurse–patient relationship and the patient’s rights.” He adds that such a decision “requires the nurse and surrogate decision maker to imagine how the patient might have reasoned: would the earlier, cognitively intact patient have agreed that, given the present impairment, the providers shouldn’t be morally bound to accept the patient’s decision to decline medication?”

Another question he suggests asking oneself is this: “could the deception survive public scrutiny, including that of professional peers?”

What’s your take? What’s your experience?—JM, senior editor

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The Cruel Irony of Alzheimer’s Disease

February 6, 2012

Photo by 50 Watts, via Flickr.

By Amy M. Collins, associate editor

As I watch my grandmother navigate the murky waters of her Alzheimer’s disease, it continues to surprise me that parts of her brain work at warp speed, while other parts seem to be completely defunct. For example, although she can’t remember what she’s done from one minute to the next, she can make up a lie to compensate for the memory loss in less than 30 seconds.

“Where did you get that new necklace, Grandma?” I recently asked at a family party. “Oh I bought it at the place where I work, you know, I type at a school,” she said, with certainty. Or when asked where she got a new sweater, she told my mother she went to the store. “How did you get there?” my mother asked. “I drove,” she said. “But you don’t have a car.” “Oh, well then I must have walked.”

She no longer remembers my name unless prodded, but she does remember that she has a cat in her room at the independent living center, and worries about it constantly. “I have to get back to take care of my cat,” she says when she visits us, becoming increasingly stressed the longer she’s away. Yet it’s hard for her to remember to care for herself, and she often forgets to shower or eat.

She still has a sense of humor, making fun of the “old” people at her facility and bragging about how great her own paintings are. She once complained about a photo of her that hangs in her independent living center’s entrance, together with photos of all the other residents. “Maybe it’s just the lighting, because nobody’s photo looks good,” my aunt said. “Yes, but the other residents really look like that,” my grandmother quipped.

But sometimes even her ability to laugh at things is heartbreaking. She recently called because she was worried about my grandfather—she couldn’t find him in the home. “Dad’s been dead for eight years,” my mother told her, worried at what my grandmother’s reaction might be in revisiting this particular pain. “Oh, well, then that explains it,” she said. “I was wondering how we both fit in a single bed!”

Another unexpected acuity is her ability to outwit her nurses. When it’s time for them to dispense her pills, she sometimes convinces them she’s already taken them. She’s also managed to sidestep nurses’ intervention in her diet. After my grandmother had gained weight over the past few months, the nurse we hired to keep an eye on her told the waiter at her facility not to give her any more ice cream after dinner or bacon for breakfast. While “in her right mind,” she would never have eaten these foods, even once denying my dying grandfather eggs because of “high cholesterol.” But the day after the nurse intervened with the waiter, we found out my grandmother had switched tables, got a new waiter, and got the bacon. Read the rest of this entry ?

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Fecal Impaction and Dementia: Knowing What to Look For Could Save Lives

August 4, 2011

By Amy M. Collins, associate editor

Photo by Sevda Cordier-Dirikoc / GE Healthcare, via Flickr*

Last October, I wrote a blog post about my grandmother, who is 85 and suffering from the first stages of Alzheimer’s disease, and about the failure of many providers to assess and treat the underlying cause of a sudden and extreme acceleration of her dementia symptoms (mania, agitation, and violence, along with nonstop, nonsensical talking).

The post generated a slew of comments on both the blog and Facebook, with over 20 nurses suggesting the probable cause for her symptoms to be fecal impaction or urinary tract infection. They were right. But several physicians and specialists had been shockingly wrong, diagnosing her with everything from closet alcoholism to VERY-late-onset bipolar disorder.

My grandmother did, in fact, have a severe fecal impaction, finally diagnosed—after several weeks of family turmoil—by a nurse in an ED. She was treated, and within a few weeks her symptoms slowly dissipated. I’m happy to say that she’s now back to her sweet and gentle self, with no memory of the episodes she herself would have deemed crazy.

Although her Alzheimer’s symptoms are still heartbreaking (she recently introduced me to a fellow assisted-living resident as her ‘special friend’ instead of her granddaughter), she isn’t agitated, hallucinating, accusing people of stealing, or showing other signs of the previous mania. At a recent family visit, she spoke of her plans to attend a luau at her facility, and requested a grass skirt!

Chronic constipation in the elderly isn’t a rare occurrence, especially in patients with dementia, but unfortunately the outcome may not always be as favorable as in the case of my grandmother. Our August CE by Leah Craft and Joseph A. Prahlow, “From Fecal Impaction to Colon Perforation,” describes the case of a woman in her 70s, nonverbal and suffering from Alzheimer’s disease, who developed a fecal impaction and eventually died. Read the rest of this entry ?

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Bearing Witness: April’s ‘Art of Nursing’ and Cover Art

April 14, 2011

By Sylvia Foley, AJN senior editor

In “Palm Sunday,” the poem featured in this month’s Art of Nursing, nurse and poet Rachel Betesh evokes the prolonged anguish of those who tend the dying. A man lies “sick and stained” in a bed, leaves his food untouched, and “hardly speaks anymore.” His wife and sons lament “the sin of the too-long moment”; time does not heal, but gapes like an “open wound between sickness and dying.”

A lesser poem might have slipped into sentimentality. But Betesh’s characters are a lively, indomitable bunch. “Pop!” the man’s sons say, visiting; you can feel their vigor. His wife remembers a baked potato he’d once given her, and her response: “You gonna marry me or what?” Indeed, it’s through witnessing, hearing the family’s stories, that the nurses can offer some comfort. They cannot heal the man, but they can “pack the wound, and listen.” (Art of Nursing is always free online—just click through to the PDF file.)

Windows and Doors by Paula Giovanini-Morris

This month’s cover art, a work of embroidery by nurse and fiber artist Paula Giovanini-Morris, explores the concept of memory and illustrates its mechanisms, the neurons and synapses through which the brain registers, encodes, and retrieves events. The piece, titled “Windows and Doors,” was prompted by another kind of witnessing: the artist’s visits to her mother, who was suffering from the early stages of dementia.

AJN senior editorial coordinator Alison Bulman spoke with Giovanini-Morris, who explained, “As I watched [my mother] search for words to express herself and attempt to recall recent events, I was struck by a sadness, realizing that in a short period of time the mother I knew might be replaced by someone who had no idea who I was.” Giovanini-Morris also acknowledged that she faces the possibility that she might eventually suffer from dementia herself. For more on this artist and her work, read this month’s On the Cover.

If you’re interested in submitting your own work to Art of Nursing—we consider visual art, very short “flash” fiction, and poetry—send me an email (sylvia.foley@wolterskluwer.com) for more information.

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‘A True Art’: Strategies for Feeding Patients with Dementia

April 1, 2011

By Sylvia Foley, AJN senior editor

The fork and the spoon, by Jordan Fischer via Flickr

Feeding difficulties in people with dementia are common, but the way such difficulties manifest can vary widely, and there is no single, one-size-fits-all solution. Nurse researchers Chia-Chi Chang and Beverly L. Roberts open their April CE article, “Strategies for Feeding Patients with Dementia,” with some disturbing statistics that make clear the scope of the problem:

People with dementia constitute roughly 25% of hospital patients ages 65 and older and 47% of nursing home residents. And more than half of them lose some ability to feed themselves, which puts them at high risk for inadequate food intake and malnutrition. Patients who are unable to eat independently must rely on caregivers to assist them . . . Unfortunately, caregivers may be unable to identify the various types of feeding problems that accompany dementia or unaware of the feeding practices required to address them.

In an earlier literature review published in the Journal of Clinical Nursing, Chang and Roberts evaluated three tools used to assess feeding difficulties in people with dementia, then created a conceptual model depicting such difficulties, contributing factors, and outcomes. Now, in this CE article, the authors take their work a step further. Read the rest of this entry ?

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Why Didn’t Physicians Know What Nurses Know?

September 27, 2010

By Shawn Kennedy, AJN interim editor-in-chief

A recent post on our blog highlighted the experience of AJN’s associate editor Amy Collins in trying to get someone to diagnose the underlying reason for acute confusion in her grandmother. Over a two-week period, Amy’s grandmother was seen by various private and ED physicians, none of whom seemed to have an adequate diagnosis or a suggestion for treatment. Finally, nurses suggested that a urinary tract infection (UTI), fecal impaction, or some other infection might be a factor. It was a fecal impaction and yet none of the five physicians who previously evaluated Amy’s grandmother had thought about or assessed for it.

What the nurses said. Amy’s post generated many comments, both on the blog and on our Facebook page. What was interesting to me was how many nurses knew to first check for a UTI, electrolyte disturbance, or fecal impaction as a reason for confusion. Here are a few samples:

“Though not conclusive, in every case I have seen a change in cognition or behavior it was either a UTI or fecal impaction. I work in home health as a CNA and I am a nursing student.”

“The first thing I think to check is infection (UTI) with elderly, confused patients.”

“I’m a senior nursing student…and this material is on our exam that we are taking Friday. With acute confusion, always check for UTI and constipation.”

“Possible UTI. Possible dehydration &/or  constipation. Poor nutrition. All can (and do) manifest as “altered mental status.” Think I’d start with those, and then evaluate further for more complex issues.”

“I would check for fecal impaction, that tends to be a common tendency especially in long term care facilities and a urine sample for UTI.”

So why did none of the physicians who saw Amy’s grandmother think of those potential causes? Is it that none were astute in geriatric medicine, or is it that it’s easier to dismiss the rantings of an older woman as dementia and move on to a “more interesting” case? Was it a case of what one commenter suggested—“simply lazy health care”?

Some resources. Or might it perhaps be that nurses are ahead of physicians in working with the aged?  The John A. Hartford Foundation, which is “dedicated to improving health care for older Americans,” has funded educational programs for nurses through the Hartford Institute of Geriatric Nursing at New York University College of Nursing (you may be familiar with the Nurses Improving Care for Healthsystem Elders [NICHE] program); has fostered leadership building through the Building Academic Geriatric Nursing Capacity initiative with the American Academy of Nursing; and also supports nine Hartford Centers for Geriatric Nursing Excellence. And AJN was pleased to be a partner in the How to Try This series on geriatric assessment (a practical series of articles and videos on recognizing and treating common conditions among the elderly). There are also programs for physicians and social workers. Let’s hope people take advantage of them—it’s painfully apparent that the need is urgent.


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When Delirium Is Mistaken for Dementia

September 23, 2010

We hope you had a chance to read “No Country for Old Women,” yesterday’s moving post by AJN associate editor Amy Collins, in which she described the failure of multiple providers to assess and treat the underlying cause of her grandmother’s rapid acceleration of already existent dementia symptoms (or what were assumed to be dementia symptoms).

It so happens that several years ago we ran an article on a frequently undiagnosed condition in older adults; the article was called “Delirium Superimposed on Dementia.” Maybe this is why two of our nurse editors were able to point Amy in the right diagnostic direction as to possible hidden causes of her grandmother’s crisis. Here’s an excerpt from that article:

A systematic review . . . found that prevalence rates of delirium in people with dementia ranged from 22% among older adults who lived in the community to 89% in hospitalized patients . . .  It’s more difficult to recognize delirium in people with dementia than in those without because of overlapping symptoms, difficulty in ascertaining baseline mental status and the acuteness of symptoms, and the tendency to attribute symptoms of delirium to a worsening of dementia symptoms.4 Yet early recognition is essential in order to determine and treat underlying causes; institute interventions to maintain safety; [and] restore prior cognitive function and improve short- and long-term outcomes.

The article gives a useful algorithm for recognizing as well as managing this condition. There’s also a video which discusses the condition and shows a nurse working with an actual patient (you have to enter your e-mail address to get to it). Reading Amy’s account of her grandmother’s experience, one can’t help wondering if any of the physicians who assessed her had ever even heard of this condition, or knew to look for it. With older patients more and more the norm in hospitals, it’s time for nurses to lead the way in educating others about this condition so it no longer goes unnoticed. As the authors point out, “acuteness, fluctuation, inattention, and altered level of consciousness are not normal in people with dementia, and their presence should trigger further assessment and treatment.”—JM, senior editor/blog editor

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In Long-Term Care, What’s Favoritism?

March 31, 2010

By Sheena Jones, an LPN who is in training to be an RN at Dutchess Community College, Poughkeepsie, NY

Birthday Cake/by Eggybird, via Flickr

Is it really fair when we get the favoritism speech from our superiors when we supply residents who have no family or friends with hygiene supplies? When there are two roommates and one has family and friends who visit daily and bring her all that she could need or want and the other has nothing and no one? Am I wrong for getting a couple of supplies from the dollar store for her? We all know that the hygiene supplies in many facilities are watered down and cheap. Am I wrong for buying someone some socks when they have none? We can’t share supplies or clothing between patients, so do I let someone walk around with nothing? If these people were my family or friends I would want someone to make them comfortable. They can’t leave the facility to go shopping with family or friends, and many of them have lost most of their mental capacity and have no one to help them—but that does not mean that they should walk around less put together than someone with a family? Do we just let these residents go without?

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A Nursing Student Learns the Trick of Reassurance

October 27, 2009

NovemberReflectionsI wasn’t sure why Mary Sue was in long-term care, but I could tell she had dementia. She spent most of her time in a recliner near the nurse’s station, asking anyone who walked by why she couldn’t go back to bed.

“It isn’t time yet, Mary Sue,” the staff would reply. I asked one of the nurses why they didn’t just take her back to bed. “When we do,” she told me, “she asks to return to the chair. Out here we can keep an eye on her. She can look out the window. She smiles more often.”

But I had yet to see a smile. This was my first rotation as a nursing student, and I tried to use techniques I’d read about to distract Mary Sue: towel folding, cards, books. But she remained on target, reaching out to me and repeating her request with a distraught look on her face. . .

Read the rest of the November Reflections essay,  written by a nurse looking back on her first nursing school rotation five years ago. The basic human need for reassurance is shared by all of us, whether we are patients or providers. What do you do to stay centered during the day, to remind yourself of your own value, to focus on what really matters . . . or just to stay in the game?

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