Posts Tagged ‘breast cancer’

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Year-End Take: A Hopeful Trend in U.S. Health Care?

December 27, 2011

Photo by James Russo, via Flickr

Less Is Sometimes More
A hopeful trend that’s gained some serious momentum this year—and may be connected to both the recession and some provisions of the Affordable Care Act—is that we’re beginning to question whether we really need quite so many tests and drugs. By ‘we’ I mean researchers, some journalists, some nurses and physicians, and of course patients. The answers aren’t always clear, and there’s plenty of room for disagreement on many such issues, but at least we’re asking the right questions more often, rather than retreating in fear and simply hurling around the word “rationing”:

Who really benefits from prostate and breast cancer screening and who is more likely to be harmed, and why? When are you too young or too old to be likely to benefit from a certain type of screening? When does aggressive care at the end of life cease to make sense? Are we confusing a risk factor with a disease, an association with causation, relative risk with absolute risk?

Does that drug you see relentlessly marketed in advertisements during breaks in the network news actually help you? Which physicians are being paid as consultants in support of various drugs, tests, or treatments, and does this compromise their objectivity? And so on. The latest example of this kind of analysis I’ve stumbled across can be found here: “Disease Creep: How We’re Fooled Into Using More Medicine Than We Need.”

The Many Faces of Nursing
So, that’s one good sign as the year heads toward its close. Another is that nurses are making their voices heard and finding new roles and new ways to use their knowledge and skills as our system begins to slowly transform itself. And they are also blogging and sharing ideas on Twitter, organizing in support of safe staffing and fair wages, getting elected to Congress and assuming major leadership positions in health care organizations, providing essential primary care as nurse practitioners, spearheading quality improvement initiatives, learning new technologies, volunteering in disaster zones, doing exciting new research, providing crucial and compassionate bedside care, advocating for patients, and much more.

This blog will probably be pretty quiet until the New Year. Be well.—JM, AJN senior editor/blog editor 

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Web Roundup: Comparing Online Health Info, Questioning a Breast Cancer Treatment, Guilt in Any Gender

February 9, 2011

Many women with early breast cancer do not appear to need removal of their lymph nodes, as is often recommended, according to a federally funded study released Tuesday.

lymphedema

Read the full Washington Post story about a new study published in JAMA (abstract is here). This story is being covered in most major news sources today, and it may signal a significant treatment shift for some patients. (One of the possible adverse long-term effects of lymph node removal is lymphedema. Here’s a page with links to the two-part article we ran about the condition a while back, as well as a related blog post by senior editor Sylvia Foley that looked at what people had been writing about their experiences with this condition.)

Speaking of advice about your health and about treatments, the health care journalism blog Covering Health alerts us today to an article at the NY Times comparing health information found at the WebMD and Mayo Clinic sites. Do you prefer the glitzy, highly produced one with lots of corporate sponsors, or the nonprofit? You know which one gets more visitors . . .

And speaking of patients, as we should, what about those who are transgendered? Does it confuse or challenge you to care for such a patient? There’s a very sensitive and painful post at the blog Nursetopia about caring for a transgendered patient who has terminal cancer and a bad case of guilt. Here’s an excerpt:

Yes, Ms. D. was transgender. She was in the middle of her transformation, and I honestly felt sadness when I did care for Ms. D. Not because she was transgender and I was uncomfortable. No, I was saddened because Ms. D. thought her cancer diagnosis was a plague from God for her transgender sins.  It was heartbreaking to hear – from her and from her nurses. No matter her nurses’ and physicians’ medical model cancer explanations, she would not be swayed. God was punishing her with lung cancer. He had to be. Her cancerous lungs were right beneath her silicone breast implants. No amount of discussions from healthcare providers or clergy convinced her otherwise.

For the perspective of another transgendered patient, here’s a Reflections essay called “Intake Interview” that we published a couple years back. Like the blog post mentioned above, it reminds us that patients often don’t undertake such changes lightly, or without very real personal cost.

Lastly, this month’s Reflections essay, “The Wisdom of Nursery Rhymes,” is by nurse, blogger, and artist Julianna Paradisi. It’s about a moment in which two very different pediatric cases intersect, unexpectedly giving the author a glimpse of hope in the midst of much that’s tragic or brutal in life.—JM, senior editor/blog editor

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Are We Trivializing Breast Cancer (and Demeaning Women) Even As We Raise Awareness?

January 18, 2010

Christine Moffa, MS, RN, clinical editor

I admit it. On January 7th my  Facebook status simply stated “Black.” Normally I’m not a joiner, but when I received a message from a FB friend that said the following, This is fun put just the color of your bra in your status and send an email to the girls only and see if the guys can figure it out, it’s to raise breast cancer awareness,” I only paused for a moment. While a small part of me wondered if it was legit, I changed my status and forwarded the message on to other friends.

It seemed cute and harmless enough—until today, when I came across Donna Trussell’s article at Politics Daily. Her arguments—in which she interrogated her own feelings (as an ovarian cancer survivor) about our culture’s seeming obsession with breast cancer awareness, and distinguished between feel-good awareness and real action—made a lot of sense to me. The whole thing reminds me of the April 2009 cover of AJN (image below) featuring a piece from the Artful Bras Project by the Quilters of South Carolina, also created to raise breast cancer awareness.

We received a lot of letters about that one, both positive and negative. Either way, it does get people talking. Is doing something as silly (and, to some, either sexist or demeaning) as this justified in the name of increasing awareness about a disease?

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‘I Can Still See the Fear in Her Eyes’: An ICU Nurse Faces a Surprising Reversal of Roles

October 9, 2009

It was a typical day in the ICU. I was wrestling with the numerous tasks I had yet to do, wondering how I would get them all done. I had three patients, I needed to draw blood gases and give my afternoon medications, and the charge nurse had just informed me that I needed to transfer one of the patients to the step-down unit-we were in a crunch for beds, and patients were waiting in the ED.

I still had a total bath and bed change to do, but the family members were in the room of the patient I needed to bathe. I had politely asked them to step out for a few minutes so I could finish my work. Now I gathered my supplies and went to the room, hoping they would take the hint.

I can’t remember her name, but I can still see her face and the fear in her eyes—and in the eyes of her family every time her cough triggered the alarm or she grimaced in obvious respiratory distress. She was on the ventilator—and much too young to be dying of breast cancer.

OctoberReflectionsSo begins the Reflections essay in the October issue of AJN. The essay is about how quickly roles can reverse themselves. It’s also about trying to strike a balance between efficiency and compassion; many nurses, we imagine, face some version of this challenge, if not so extreme, on a daily basis. Do you?

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