Archive for the ‘social media’ Category

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“Let Patients Help”: Nurses and e-Patients

March 30, 2012

 

Joy Jacobson is a health care journalist and the poet-in-residence at the Center for Health, Media, and Policy at Hunter College, where she teaches writing to nursing students.

In the March issue of AJN, a letter writer responds critically to my news report, “Leveling the Research Field Through Social Media,” published last October. My report summarizes some recent trends in medical research, including patients using Facebook and other social networking sites to push for the funding of research into treatments that the science may not support. I go on to discuss PatientsLikeMe, which describes itself as “a health data-sharing platform” designed to “transform the way patients manage their own conditions.”

The letter writer objects to the idea of patients sharing their own data online. Can vulnerable, mentally ill patients, she asks, consent to participate in online research? Is enough being done to safeguard them? “I suggest we disseminate information to nurses that helps them steer patients away from Web sites such as PatientsLikeMe,” she concludes, “until programs and processes are in place to better protect the public we’ve pledged to serve.”

Several PatientsLikeMe researchers responded to this nurse’s points; a synopsis of their responses was included along with the reader’s letter in the March issue. “What we are doing is new and as such should be scrutinized frequently and rigorously by peers to ensure we are meeting the ethical standards one would expect for our patients,” they write. “We believe our established processes and procedures are consistent with these expectations.”

While I think the letter writer’s urge to protect patients is laudable, I find unrealistic her suggestion that nurses “steer patients away” from social media, especially in this age of e-patients and participatory health care. As I understand it, e-patients are not reckless. Rather, they’re “enabled, equipped, engaged, and empowered.” But even those who aren’t knowledgeable might want to participate more fully with clinicians and researchers alike in seeking the best care available. Read the rest of this entry ?

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Kony 2012: A Real Villain, Plus a Few Questions

March 12, 2012

By Maureen ‘Shawn’ Kennedy, MA, RN, AJN editor-in-chief

Social media is once again proving its power to engage people around the world—this time, in the efforts to find and capture Joseph Kony, the leader of the Lord’s Resistance Army (LRA), a brutal militia group that waged a war of terror in Uganda for two decades and is now operating, in a diminished but still lethal capacity, in the Central African Republic, the Democratic Republic of the Congo, and South Sudan.

Kony was indicted for war crimes by the International Criminal Court in 2005 based on his record of murder, torture, rape, and the enslavement of thousands of people, mostly women and children. At its height, his army was said to be comprised mostly of child soldiers—the children he abducted and forced to become killers, whose first victims were often their parents. Filmmakers with Invisible Children, a nonprofit organization dedicated to influencing change in Africa, created Kony 2012, a film that “went viral” last week and fuelled widespread support for a campaign to support efforts to capture Kony.

Kony and the atrocities of the LRA are not new “news.” AJN reported on the issue of child soldiers in Uganda and numerous other countries in 2005, when we profiled the work of nurses Susan McKay and Dyan Mazurana, who researched and wrote about the plight of girl soldiers in their 2004 book, Where Are the Girls? The New York Times carried an article on LRA activities in 1997. For more than a decade there were official reports and fact-finding committees by the U.S. Congress, the United Nations, the World Health Organization, and others. In 2004, Uganda’s child soldiers was described by the UN as one of the “10 stories the world should hear more about.” In 2008, the UN Security Council passed Resolution 1856, condemning the LRA’s continued activities.

And last October, President Obama notified Congress that he had “authorized a small number of combat equipped U.S. forces to deploy to central Africa to provide assistance to regional forces that are working toward the removal of Joseph Kony from the battlefield.”

So why the emphasis now? Social media and the activation of a grass roots campaign with a targeted message enabled the message to spread rapidly. The film has been viewed over 55 million times on YouTube and the campaign has made headlines and the evening news shows, with celebrities jumping on the bandwagon, calling via Facebook and Twitter for Kony’s capture. The idea has been to make Kony so famous that he will have no place to hide, and to move people to demand that policy makers intervene.

Emerging questions. As a number of criticisms of the film and the organization behind it have noted (see this New York Times article and this Foreign Policy blog post), the video doesn’t make it very clear that the Ugandan army targeted Kony and drove him out of the country a number of years ago, nor that his marauding forces have since shrunk to several hundred, with most of the original child soldiers considerably older now and no longer with him. The articles also cite a number of sources who have raised questions about Invisible Children and its finances as well as about whether this campaign, however well meaning, is likely to be the best use of resources in a region beset by human rights and public health issues. Read the rest of this entry ?

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Blogroll Housecleaning Note

February 9, 2012

"N-R-O-G super suds housecleaning week&qu...

This is just to say that we’ve done some minor housekeeping and deleted links to a number of blogs that have been asleep several months or longer. There’s nothing personal in this, and please let us know if one of these was yours and you’ve decided to revive your blog, give it an infusion of new design and energy, or the like. We want our blogroll to be useful, and it won’t be perceived as useful if we’re linking to sites that have gone dark. Please also let us know if there’s a really great nurse blog that we don’t know about, even if it’s yours. We can’t guarantee that we’ll link to it, but we’ll certainly check it out.—JM, blog editor

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Top 10 (New) AJN Posts of 2011

December 20, 2011

"Consumer Choice,' BdR76, via Flickr

Some of our posts, like this one from 2009 (“New Nurses Face Reality Shock in Hospitals–So What Else Is New?”) keep getting found and read. They remain as relevant today as they were when we posted them. Our top 20 posts for the year (according to reader hits, that is) include several others like this: “What Is Meaningful Use? One Savvy Nurse’s Take”; “Is the Florence Nightingale Pledge in Need of a Makeover?”; “Do Male Nurses Face Reverse Sexism?”; “Are Nursing Strikes Ethical? New Research Raises the Stakes”; and “Workplace Violence Against Nurses: Neither Inevitable or Acceptable.”

But putting aside these contenders (why do so many of them have questions in their titles?), here are the top 10 (again, according to our readers) new posts of 2011, in case you missed them along the way. Which doesn’t mean that these are (necessarily) our best posts, or a representative sample, or that many others didn’t hit home for various subgroups of readers.

While we all get a little tired of lists by this time in the year, we don’t really use them an awful lot here at Off the Charts. So please indulge us this once, and thanks to everyone who wrote, read, and commented on this blog in 2011.—Jacob Molyneux, AJN senior editor/blog editor

1. “Notes of a Student Nurse: A Dose of Reality,” by Jennifer-Clare Williams

2. “Placenta Facebook Photos: Nurse and Mommy Tribes See Expulsion Differently,” by AJN editor-in-chief Shawn Kennedy

3. “Dispatches from the Alabama Tornado Zone,” a series of posts by Susan Hassmiller, senior adviser for nursing at the Robert Wood Johnson Foundation

4. “Confused About the Charge Nurse Role? You’re Not Alone,” by Jacob Molyneux

5. “The Priceless Clarity of Inexperience,” by Marcy Phipps, an ICU nurse and regular contributor to this blog

6. “Don’t Cling to Tradition: A Nursing Student’s Call for Realism, Respect,” by Medora McGinnis

7. “Bullying Wars: Theresa Brown vs. ‘the entire profession,’” by Shawn Kennedy

8. “Remembering 9/11: Nurses Were There,” Shawn Kennedy

9. “Killing Traditional Nursing Duties #2,” Shawn Kennedy

10. This one’s a tie: “Nurses, Hospitals, and Social Media: It Depends What Business You’re In,” by Julianna Paradisi, artist/nurse/blogger, and “One Take on the Top 10 Issues Facing Nursing,” by Shawn Kennedy

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Patient Privacy and Company Policy: What Nurses Should Know About Social Media

August 26, 2011

Should you be able to have an online discussion about hospital policies that aren’t working or are unfair? What if the point of your discussion is to improve working conditions or to troubleshoot and not to cast an uncomplimentary light on your employer? Right now, the answer is “good question.”

If you’re a nurse or health care worker of any sort, if you sometimes use one or more of the many available social media options (Facebook, blogging, Twitter, etc.), if you’re worried about what it’s OK for you to do or say online, if you have a job or are thinking of looking for one, we strongly suggest you take a look at this month’s iNurse column in AJN (quoted above).

In it, Megen Duffy, RN, aka blogger Not Nurse Ratched, considers such issues as the following:

  • hospital social media policies (always read them; some are surprisingly restrictive)
  • HIPAA and potential issues raised by blogging about aspects of work
  • the ways your social media history may be mined by HR departments at prospective employers
  • the reasons why she strongly believes that social media isn’t going away and has many potential benefits, despite various well-publicized pitfalls—and why nurses need to let their input be known so that social media policies will be sane and balanced

And, since this is social media, we hope you’ll let us know your thoughts, in the form of comments. Maybe Megen will even weigh in, if you really get her attention.—Jacob Molyneux, senior editor

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AJN’s Top 10 Blog Posts for the Last Quarter

August 2, 2011

At this blog we’re not always devoted practitioners of the art of the list. Used too often and too cynically (some of the more mysterious nursing blogs consist entirely of lists of articles and excerpts from other blogs), lists can be just another form of journalistic cannibalism.

But it sometimes occurs to me, as I publish a new post that takes its place at the top of the home page and pushes all those below down another notch (until, after a few such nudges, they gradually fall off the page, entering the purgatory of the blog archives), that this isn’t entirely fair.

While blogs allow for quick reaction to a news story, a public health emergency or controversy, a new bit of published research, they are also places for writing that isn’t so narrowly tied to a specific date and event. Many thoughtful posts by excellent writers have been published here in the past couple of years. With this in mind, here’s a list of the 10 most read blog posts for the past 90 days. It doesn’t mean that these are necessarily the very best posts we published in that time, or that they were even published in the last 90 days . . . but it’s one way of measuring relevance.—Jacob Molyneux, senior editor/blog editor 

1. Dispatches from the Alabama Tornado Zone
This one is actually a page with links to a series of powerful and thought-provoking posts by Susan Hassmiller, the Robert Wood Johnson Foundation Senior Adviser for Nursing, who volunteered with the Red Cross after the devastating Alabama tornadoes in late April of this year.

2. Notes of a Student Nurse: A Dose of Reality
This honest account of a first semester of nursing school is by Jennifer-Clare Williams, a student at Cox College of Nursing and Health Sciences in Springfield, Missouri. We hope to have more of her posts in the future.

3. Bullying Wars: Theresa Brown vs. ‘the entire physician profession’
AJN‘s editor-in-chief Shawn Kennedy comes to the defense of nurse and author Theresa Brown, who dared to write about physicians who bully nurses.

4. New Nurses Face Reality Shock in Hospital Settings – So What Else is New?
We ran this one two years ago, but it’s as relevant as ever for nurses who’ve just graduated from school and are starting out in a new job—and for the nurses who work with them.

5. Don’t Cling to Tradition: A Nursing Student’s Call for Realism, Respect
By Medora McGinnis, a student at Bon Secours Memorial College of Nursing in Richmond, Virginia, this post got a lot of attention with its assertion that “nontraditional” nursing students may be the new normal.

6. What Is Meaningful Use? One Savvy Nurse’s Take
By Jared Sinclair, an ICU nurse in Nashville who has a blog about health care and technology, this post demystifies for nurses some of the issues associated with electronic health records.

7. Workplace Violence Against Nurses — Neither Inevitable Nor Acceptable
A look at some helpful articles that have addressed aspects of this perennially troubling issue. Read the rest of this entry ?

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Sexual Predators Online: Where Do They Intersect With Adolescents and Young Adults?

June 30, 2011

Here are some of the results described in “Online Social Networking Patterns Among Adolescents, Young Adults, and Sexual Offenders,” an original research article published in the July issue of AJN:

nearly two-thirds of Internet offenders said they’d initiated the topic of sex in their first chat session; more than half . . . disguised their identity when online; most . . . preferred communicating with teenage girls rather than teenage boys; high school students’ experience with “sexting” . . . differed significantly according to their sex; a small number of students are being threatened and assaulted by people they meet online; avatar sites such as Second Life were used both by students and offenders . .  . .

What’s your own experience? Have a look at the article, and pass along the link if you find it useful, as a parent or nurse. Have you heard any concerns about Internet safety from parents or adolescents you encounter in your own practice or community? What’s your own take on Facebook and privacy, or any other issue raised in this article?—JM, senior editor

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Getting Nursing News (Whether You Like It Or Not)

June 10, 2011

By Gail M. Pfeifer, AJN news director

During a recent public radio interview between Anita Dunn, a Democratic strategist and former senior advisor to President Obama, and Republican strategist Frank Luntz (author of Words That Work: It’s Not What You Say, It’s What People Hear), Dunn remarked that folks “increasingly seek people they already agree with to get their news from.” (Here’s the show’s transcript.)

That is a sad commentary on the state of news journalism today. By definition, a journalist’s report should be fair and unbiased. And news reporting, above all, should be held to that high standard.

If you read AJN’s news department regularly (here’s the current issue’s table of contents; scroll down to find links to the new articles), and we hope you do, we should tell you how we try to maintain such standards. Read the rest of this entry ?

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Some Fun Friday Food for Thought

May 20, 2011

By Shawn Kennedy, AJN editor-in-chief

With rain and gray clouds clinging to the East coast, this week seemed especially long. Commuting into New York City took much longer than usual, but on a positive note, there was more time to listen to the radio or read the paper. This week, some of us at AJN came across some interesting stories. They got us through ‘til Friday, so we’re sharing them—they’re too good to keep to ourselves.

  • One staffer’s reading turned up this piece: the Ford Motor Company is developing in-vehicle monitoring of diabetes and allergies. According to the article, it’s “aimed at helping people with chronic illnesses or medical disorders such as diabetes, asthma or allergies manage their condition while on the go.” Meaning, while driving?
  • As we were having a laugh about what this scenario might look like in reality, one editor spoke of a friend who, while driving herself to the hospital in labor, was using an iPhone app to monitor contractions. I wonder if there’ll be new laws against using health apps while driving…
  • My favorite story has nothing to do with nursing, but I can’t resist sharing it. Time.com ran a story about the possible end of the world, which some people think will happen Saturday. What’s startling is that some companies are already cashing in. One company called Eternal Earth-Bound Pets has the answer for those worried about pets left behind: its representatives are confirmed atheists—they’ll take care of the pets.

I’m not sure who said it, but you really can’t make this stuff up. Happy weekend!

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Nurses, Hospitals, and Social Media: It Depends What Business You’re In

January 19, 2011

By Julianna Paradisi, RN

Zuckerberg/via Flickr, World Economic Forum

Before the placenta picture posted on Facebook by a nursing student made national news, I read Time Magazine’s “Person of the Year 2010,” by Lev Grossman. Born in 1984, Mark Zuckerberg, the inventor of Facebook, is decades younger than the average working nurse. According to the article, so many people now belong to Facebook that if the Web site were a country “it would be the third largest, behind only China and India.” To refuse to recognize the social impact of Facebook is to miss the boat.

Throughout the nurse blogosphere, nurses are demanding that hospitals create policies about the use of social media. Some hospitals have. Not surprisingly, these documents state that no unauthorized photographs of staff, patients, or patient care areas should be taken, let alone posted on the Internet.

Hospitals with social media policies are not necessarily squelching their employees’ right to freedom of speech. They don’t want to spend time and money in court defending their public image. They already spend lots of money on marketing. They are in the business of patient care, not entertainment. So hospitals with social media polices take the position that you can post or tweet to your heart’s content, but should keep in mind the following:

  • Nothing you post is private.
  • If your online behavior disrupts patient care or creates hospital liability, the hospital reserves the right to fire you.

Consider your personal commitment to your own rights. Do you really want to catch every ball that’s thrown to you? Hospitals don’t want to spend their time and money on social media lawsuits. Do you?

Social media is not going away. One of Mark Zuckerberg’s profitable insights is that people like reading about and seeing their friends and friends of friends online. A few years ago, many of us were upset when the Patriot Act made it possible to force libraries and bookstores to report which books their patrons read. Now we want everyone to know what books we “like,” and no one seems to mind that Amazon tracks what we read, then focuses ads according to our purchases.

My own concept of privacy is changing. Read the rest of this entry ?

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