When Your Child Has a Scary Chronic IllnessJune 13, 2012
By Jacob Molyneux, senior editor
It may be easier to live with a chronic illness than to have a child who has one. The June Reflections essay, “Seized,” is by a mother who eloquently evokes her struggle to accept her daughter’s epilepsy. She honestly confronts her own resistance to letting her daughter be a normal child—despite the terrifying episodes, the sense of helplessness she feels as a parent, the wish that she could always protect her daughter.
Here’s how it begins, but I hope you’ll click the link and read the entire essay.
It begins with a gurgle from deep in Daney’s throat: low, primal, guttural. In the next few seconds, her back will arch and her palms will turn up. Her 10-year-old self will twitch, then tremble, like she’s being electrocuted—and in a way, she is.